As a person with severe and very frequent seizures, I am constantly in fear of other people’s lack of knowledge about my condition. There are a lot of epilepsy myths and whenever someone has a seizure, there is ALWAYS some self important douche that insists he/she knows what she is doing because they took a semester of nursing school in 1976. I have had seizures in public places many times (my seizures are almost daily) and I have had people try to stick dirty spoons in my mouth, their wallets, rolled up cloth napkins and all sorts of gross and dangerous things. I have had people start praying because they think I am possessed by the devil (seriously), and I have had people put me in their car and drive me to their home (which is terrifying, and sort of kidnap). 
One of the worst parts about having epilepsy in my opinion is having to trust other people, usually strangers, not just because I don’t trust strangers but also because I don’t feel ok about putting a responsibility in their hands that they did not sign on for. Because my seizures are almost daily, I am almost always accompanied by my husband or a friend or assistant who knows how to deal with my condition and has agreed to do so, but I can’t be watched 24 hours a day.
This evening, I went shopping with a friend who is a bit shy and not very assertive. (She is lovely, I adore her, but she is not used to people’s reactions when I have a seizure. She did not know that there is always that one self important douche in every crowd.) I had a seizure. Of course, that one self important douche was there - a man in his late 50’s who insisted on putting something in my mouth; in this case his wallet which had a metal closure and frame that covered most of it. My friend repeatedly asked him to stop and he did not. Unfortunately, my friend was not very assertive (not her fault, she is just sweet and shy) and the guy  pushed her out of the way and took over, even as she explained that you’re not supposed to do that with epileptics. He insisted that in the army in the 70’s, that’s the way it was done. My friend argued that this was not the army, nor the 70’s, but he would not listen and she kind of froze up.

The result is that I now have seven stitches in the side of my left cheek and a chipped front tooth, both caused by the man’s metal wallet cutting my face open. 

Please, if you know someone with a seizure disorder, take a few minutes to learn how to deal with a seizure. It isn’t complicated and your knowing and being ready and ok with helping will relieve a lot of fear. Please take the time to pass this on, as it could save someone’s life, or at least their face.

As a person with severe and very frequent seizures, I am constantly in fear of other people’s lack of knowledge about my condition. There are a lot of epilepsy myths and whenever someone has a seizure, there is ALWAYS some self important douche that insists he/she knows what she is doing because they took a semester of nursing school in 1976. I have had seizures in public places many times (my seizures are almost daily) and I have had people try to stick dirty spoons in my mouth, their wallets, rolled up cloth napkins and all sorts of gross and dangerous things. I have had people start praying because they think I am possessed by the devil (seriously), and I have had people put me in their car and drive me to their home (which is terrifying, and sort of kidnap). 

One of the worst parts about having epilepsy in my opinion is having to trust other people, usually strangers, not just because I don’t trust strangers but also because I don’t feel ok about putting a responsibility in their hands that they did not sign on for. Because my seizures are almost daily, I am almost always accompanied by my husband or a friend or assistant who knows how to deal with my condition and has agreed to do so, but I can’t be watched 24 hours a day.

This evening, I went shopping with a friend who is a bit shy and not very assertive. (She is lovely, I adore her, but she is not used to people’s reactions when I have a seizure. She did not know that there is always that one self important douche in every crowd.) I had a seizure. Of course, that one self important douche was there - a man in his late 50’s who insisted on putting something in my mouth; in this case his wallet which had a metal closure and frame that covered most of it. My friend repeatedly asked him to stop and he did not. Unfortunately, my friend was not very assertive (not her fault, she is just sweet and shy) and the guy  pushed her out of the way and took over, even as she explained that you’re not supposed to do that with epileptics. He insisted that in the army in the 70’s, that’s the way it was done. My friend argued that this was not the army, nor the 70’s, but he would not listen and she kind of froze up.

The result is that I now have seven stitches in the side of my left cheek and a chipped front tooth, both caused by the man’s metal wallet cutting my face open. 

Please, if you know someone with a seizure disorder, take a few minutes to learn how to deal with a seizure. It isn’t complicated and your knowing and being ready and ok with helping will relieve a lot of fear. Please take the time to pass this on, as it could save someone’s life, or at least their face.

17,323 notes
  1. sleepwalk4 reblogged this from chocolatevevo
  2. jesokaa reblogged this from jewlo
  3. queenxchan reblogged this from jewlo
  4. encyclopediac reblogged this from sugarelixir
  5. metagrossvevo reblogged this from r645
  6. seizureknifefights reblogged this from jewlo
  7. lovelycolourpink reblogged this from jewlo
  8. bottlenosedolphin2 reblogged this from jewlo
  9. inkandsoul reblogged this from greenspock
  10. den-mate reblogged this from jewlo
  11. hiiplou reblogged this from snowqueenperrie
  12. snowqueenperrie reblogged this from jewlo
  13. inothechief reblogged this from cozcat
  14. polkadottedties reblogged this from milk-and-cake
  15. milk-and-cake reblogged this from nico-hulkenbutt
  16. desertlibrarian reblogged this from goddessnatasha
  17. holajasmine reblogged this from tolovepassionately
  18. tolovepassionately reblogged this from pacificrimlick
  19. pacificrimlick reblogged this from reptila-tequila
  20. signs-to-nowhere reblogged this from jewlo
  21. ace-of-huns reblogged this from phsychrome
  22. phsychrome reblogged this from hellarefs
  23. olivia-darth-whatever reblogged this from astronomistgav
  24. astronomistgav reblogged this from i-am-the-monster-you-fear
  25. superlockwhoareyou reblogged this from i-am-the-monster-you-fear
  26. i-am-the-monster-you-fear reblogged this from abaddonsbabe
  27. little--sapling reblogged this from jewlo